I had a difficult start to my life. I was born prematurely and I have cerebral palsy spastic diplegia. As a result of physical abuse from a caregiver in 2002, I’m now a paraplegic.
I currently work for the State of California in a job that is very low paying, the work environment in my department is abusive and micro managed, and I’ve been bullied many times. My university degree, work ethic, and willingness to take on extra work is looked upon as a bad thing.
For fifteen years, I’ve tried unsuccessfully to get a better job that is doing something that I enjoy, is able to challenge me and help me expand my skill set, and help me pay for my disability related expenses on my own. I would prefer to work rather than sit at home and do nothing all day. There are some months where being able to afford food and my utilities is a giant challenge. I make just enough not to be able to qualify for the assistance programs that are available but not enough for paying my utilities and food, etc. without it being a giant challenge.
My family didn’t have much when I was growing up but we had just enough to make it each month with nothing to spare. Many people think that I would live now how I grew up-with just enough to get by each month. I want something more out of my life. I want to be a productive member of society and live my life the way that I want to instead of someone else dictating it for me. I want to be able to afford the disability related items and equipment and life’s necessities my own.
I never ask for something that I don’t need and that I can’t medically justify as necessary. Right now, I’m being told by Anthem/Blue Cross, my insurance company,that a Hill-Rom VersaCare bed and P500 mattress is not medically necessary when my doctor and I have proven that these items are necessary. The items that Anthem/Blue Cross say would satisfy my needs would end up putting me in the hospital within days of me using them-guaranteed. The other state disability resources will not pay for it either even though the need has been medically justified.
The bed and mattress that I’m trying to get would help me stay out of the hospital, help with pain management, have a better quality of life even with my disabilities, and with the bed and mattress, I will be able to continue to work for years to come.
In recent years, I’ve had so many of my goals and dreams destroyed because of other people’s actions. I can count on my hand the things that I’ve had in my life that I’ve actually wanted and hoped for. My hope is that I can achieve goals in 2016. One of them is getting a position in the private sector with Red Bull that will allow me to be able to get the disability related items as well as the other things in life that I need and also eventually lead to me living in Vienna, Austria, Germany, or Switzerland at some point where I can enjoy my life after all of the hell that I have been through. I have wanted to work for Red Bull in Santa Monica, California for many years because of the company’s commitment to spinal cord research through Wings for Life-a spinal cord research foundation co-founded by Dietrich Mateschitz, the founder of Red Bull.
Here’s the links to the items that I need as well as a link to my gofundme page. I can’t afford them because I can barely afford life’s daily necessities. Can anyone help me with the cost of the bed, mattress, and new bedding for the bed? I’m trying to raise the necessary funds to buy the bed, mattress, and new bedding for the bed as soon as possible. Any help that anyone can provide is greatly appreciated.